Meghan Buzby from The Association for Frontotemporal Degeneration highlights FTD Awareness week

Meghan Buzby from The Association for Frontotemporal Degeneration discusses frontotemporal degeneration (FTD), a rare form of dementia affecting individuals aged 45-64, making it the leading cause of young-onset dementia. FTD is often misdiagnosed and has high financial costs, with families facing $120,000 annually compared to $64,000 for Alzheimer's. The Association for Frontotemporal Degeneration (AFTD) advocates for legislative support, including the Credit for Caring Act of 2025, which would provide a $5,000 tax credit for eligible family caregivers. The organization was founded by Helen Anne Comstock and relies heavily on volunteers, many of whom are personally affected by FTD.

This year, World FTD Awareness Week poses the question to the world:  “What If It’s FTD? The Association for Frontotemporal Degeneration is the leading organization focused on helping people and families impacted by FTD and driving research for a cure. FTD typically first appears as changes in behavior, personality and language, not memory. Learn more about them at theaftd.org. #endFTD.